Why Nursing Home Residents Need the Essential Caregivers Act

Older woman resting in bed and looking to the side.
For many nursing home residents, family caregivers are not just visitors. They are comfort, connection, advocacy and care. This week on Code WACK!, Melody Taylor Stark shares how isolation during COVID affected her husband Bill — and why she’s fighting to make sure residents are never again cut off from the loved ones they depend on most. Listen to “‘No Way to Live’: The Cost of Nursing Home Isolation.”

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THIS TIME ON CODE WACK!


Imagine being cut off from Mom – a nursing home resident – for months. You can’t bring her favorite foods, or help dress her, hug her, or even hold her hand.

For thousands of families during the COVID-19 pandemic, this became a heartbreaking reality. And without new laws, advocates say, it could very well happen again.

That’s why they are fighting to ensure our loved ones are never again separated from those they depend on most in nursing homes and other long-term care settings

Today, we’re speaking with Tony Chicotel, senior staff attorney with California Advocates for Nursing Home Reform, or CANHR. For decades, Tony has fought to protect the rights of nursing home residents. And he says the isolation and neglect that families experienced during COVID was one of the most painful chapters of his career.

This is part two of a two-part series on the Essential Caregiver’s Act. 

Check out the Transcript and Show Notes for more!

And please keep Code WACK! on the air with a tax-deductible donation at heal-ca.org/donate.

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SHOW NOTES

WE DISCUSS

Tell us about the conditions for nursing home residents and their families during COVID and why you are fighting to pass the federal Essential Caregivers Act?

 

CHICOTEL: … suddenly, it’s Armageddon, like the unthinkable has happened, where the family members are completely cut off or almost completely cut off, but certainly directly cut off from seeing their loved ones or being in the facilities. And in many cases, they had visited daily to provide direct support to these residents, and now could no longer get into the building. They were super concerned.

… at the same time that we cut off this vital resource for residents, we were also suffering from, you know, unparalleled understaffing in nursing homes. And the staff who were there were just overwhelmed with infection control protocols that they previously hadn’t had to adhere to.

I think for me, the biggest lesson learned from COVID is how vital caregivers are, how vital these family members are to the support and the outcomes of these residents. And … one way that we can acknowledge how important they are is to protect that access, no matter what happens.

 

Helpful Links

 

HR 6766: The Essential Caregivers Act of 2025, GovTrack.us

California Advocates for Nursing Home Reform (CANHR)

Study finds significant weight loss in residents of assisted living facilities during the COVID-19 quarantine, University of Texas Health Science Center

Lessons learned from social isolation in nursing homes during the COVID-19 epidemic, Springer Nature Link

 

Guest Biography: Tony Chicotel

 

Tony Chicotel is from Huron, Ohio, and a graduate of Muskingum University (B.A.) The Ohio State University College of Law (J.D.) and the University of California School of Public Policy (MPP).  

Since 2006, Tony has worked for California Advocates for Nursing Home Reform, also known as CANHR.  

His primary work is to promote residents’ rights in long-term care facilities through litigation, legislation, regulatory policy, and consumer education.  

Tony’s focus areas include: civil rights, eviction defense, dementia care, incapacity and decision making, conservatorship, and end-of-life care.

 

Host Biography: Brenda Gazzar

 

Brenda Gazzar, the host and co-producer of Code WACK!, has produced over 300 weekly podcast episodes, with downloads topping 400,000. A skilled interviewer and storyteller, Brenda brings nuance, curiosity, and clarity to every conversation.

Brenda has worked as a multilingual and award-winning reporter with more than two decades of experience in California and the Middle East.

Her work has been published by Reuters, Ms. Magazine, USA Today, Los Angeles Daily News, the Orange County Register, The Wrap, The Jerusalem Post, Cairo Times, and numerous other publications. She speaks Spanish, Hebrew, and a moderate level of Arabic and is the recipient of national, state, and regional awards.

Brenda also enjoys being a life coach, helping people align with their purpose so they feel fulfilled while achieving their boldest dreams.

Brenda’s work is grounded in a belief that systemic change and personal growth go hand in hand, and she’s here for both.

 

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Keywords:

Code WACK!, HEAL California, Brenda Gazzar, Essential Caregivers Act, essential caregivers, nursing home isolation, long-term care, family caregivers, caregiver advocacy, nursing home residents, elder care, disability rights, healthcare justice, Medicare for All, single payer healthcare, nursing home reform, COVID lockdowns, aging with dignity, social isolation

 
 

 

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This podcast is powered by HEAL California,
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HEAL California is an independent news and information hub focused on the Medicare for All movement. We highlight the ongoing injustices of our broken healthcare system and amplify the voices of those most impacted by it through nonpartisan news, views, podcasts, and videos. 

Our Podcasts shine a light on the failures of America’s healthcare system and explain how Medicare for All could help.

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